I overheard something today at the doctors which got me thinking. (Yes I was getting an IV, no I wasn't in the same bed as the one Large Dad sat on.)
Nurse: So how are you going, how are your legs?
Mr Eastern European: A liddle bit achy, not so bad, not so good.
Nurse: cluck cluck (yes she actually clucked) But overall how are you doing? Is your health generally alright?
Mr Eastern European: sigh, I suppose so..
Nurse: Do you have any other problems?
Mr Eastern European: yes my wife.
Me: cough cough
Nurse: Anything apart from your wife?
Mr Eastern European: No.
He was serious, the cliched response in this case was true. He then went on to talk about his wife's Alzheimer's and how looking after her was getting to be more than he could cope with.
Alzheimer's disease, I shuddered. It feels like it is something that might actually happen to me, not just to other people.
I pondered this for a while. Everyone gets a bit absent minded at times but we know that Alzheimer's disease is so much more than that. Everyone also gets a bit fatigued at times so why is me/cfs so misunderstood?
One answer is that Alzheimer's has been well branded. It has one name that has come to represent the devastating complexity of the disease not just one of the symptoms. Would something called Chronic Absent Mindedness Syndrome or (C.A.M.S) be as well known?
The naming of me/cfs is one of those topics that can easily lead me into a rant and I don't want to bore you, as I'm sure you've heard it all before and probably have your own opinion on the subject. So I've decided to be proactive for a change and ask for your help.
Can you please take the time to fill out a little survey?
It's really short (4 questions).
Click the link below and have your say.
What's in a Name?
Below is the full link, in case you want to cut, paste and share :)
Thanking you in kind anticipation.